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Photo Courtesy: @Savy_Hudson on Instagram

Meet Hudson. He is just fifteen months old but has gone through more than most adults have. He was diagnosed with Nemaline Myopathy ACTA1.

A Saturday spent in our jammies ???? #lazyday #nemalinemyopathy #hudsonjames

115 Likes, 6 Comments - Savannah Bosworth ???? (@savy_hudson) on Instagram: "A Saturday spent in our jammies ???? #lazyday #nemalinemyopathy #hudsonjames"

His mother, Savannah Bosworth, spends every second of her day thinking of her beautiful son. She has shared their journey on her instagram, @Savy_Hudson. The good, the bad, and the ugly, all put on this account to help inspire fellow Nemaline Myopathy parents. Her account also helps people without a child with this condition understand the little things that can make their life difficult.

I love you more than anything hudson James ????????✨ You are magic to my soul✨

171 Likes, 9 Comments - Savannah Bosworth ???? (@savy_hudson) on Instagram: "I love you more than anything hudson James ????????✨ You are magic to my soul✨"

These two are inseparable, that’s for sure.

If you find it within your heart to help this amazing family and this beautiful baby boy, click here.